Medical research needs lay involvement.
نویسنده
چکیده
منابع مشابه
Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation
BACKGROUND Public and patient involvement in the design of people-centred care and research is vital for communities whose needs are underserved, as are people with rare diseases. Innovations devised collectively by patients, caregivers, professionals and other members of the public can foster transformative change toward more responsive services and research. However, attempts to involve lay a...
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Plain English summary There is a consensus that patients and the public should be involved in research in a meaningful way. However, to date, lay people have been mostly involved in developing research ideas and commenting on patient information.We previously published a paper describing our experience with lay partners conducting observations in a study of how patients in hospital are involved...
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PLAIN ENGLISH SUMMARY Members of the public share their views with researchers to improve health and social care research. Lay assessing is one way of doing this. This is where people, drawing upon personal and general life experience, comment on material, such as grant applications and patient information, to highlight strengths and weaknesses and to suggest improvements. This paper reports on...
متن کاملLay perspectives: advantages for health research.
Although involvement of the consumer is increasingly being advocated in health related research, it is not welcome universally. Furthermore, the underlying rationale is rarely made explicit. Policy makers, health care professionals, and researchers need to be clear about the benefits and ways of including lay perspectives and the criteria for evaluating these. Examples of lay involvement in set...
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This article analyzes master Joan's Trotula, a late fourteenth-century Catalan text on women's health addressed to an infanta of Aragon which survives in one late fourteenth-century manuscript. It presents a hypothesis regarding its genre, its composition and use at the Catalan-Aragonese Court, and its later fortuna. It considers how Master Joan inscribed in the text a conception of women's med...
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عنوان ژورنال:
- Journal of medical ethics
دوره 24 5 شماره
صفحات -
تاریخ انتشار 1998